Event For International Hearing Voices Day September 14 2013

HEARING VOICES NETWORK AOTEAROA NZ

                                Are pleased to host an afternoon for

INTERNATIONAL HEARING VOICES DAY

SEPTEMBER 14TH 2013

Come along and join us for the afternoon. All welcome.

                         We will have a viewing of the  excellent Documentary

“OPEN DIALOGUE”  by Daniel Mackler

In the Far North of Finland, a stones throw from the Arctic Circle, a group of innovative family therapists converted the area’s traditional mental health system, which once boasted poor outcomes for schizophrenia, into one that now gets the best statistical results in the world for first break psychosis. They call their approach Open Dialogue.

Their principles, though radical in this day and age of multi-drug cocktails and involuntary hospitilization, are surprisingly simple.  Daniel Mackler travels to Finland to see for himself and interviews the therapists involved.

Please bring a plate along, for a shared afternoon tea and wonderful discussion afterwards.

Hearing Voices Network Aotearoa NZ, will host their Annual General Meeting.  All are welcome to stay. We rely on the help of volunteers to continue our work and are always looking for people willing to help J

Hearing Voices Network Aotearoa NZ are a registered charity independent society. Commited to providing research and support for voices and visions in NZ.

 

When: 1.00pm to 3.30 PM Saturday September 14th 2013

Where: Connect SR 215 Wairau Road, Glenfield, Auckland

Cost: Free, please just bring a plate  for a shared afternoon tea,

Bookings: Adrienne at 0272650266 or email: hvnanz@gmail.com with your name and contact details. Please note spaces are limited. You will need to book.

 

Hearing Voices Network UKs position on new DSM5 pyschiatric manual

Here is a great article from Hearing Voices Network Uks page  I have written it out here . They are asking for comments on their page.

DSM 5, the fifth edition of the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders – often referred to as the ‘psychiatric bible’ – has now been released in the wake of huge controversy and debate. The alternative classification system, ICD, is based on exactly the same principles. Some of the world’s most eminent psychiatrists have spoken out about the current system.

The former director of the US’s largest funding body for mental health research, the NIMH, recently described DSM as ‘totally wrong, an absolute nightmare’. The chair of the DSM 5 committee admitted that ‘We have been telling patients for several decades’ that the biological causes of distress are about to be discovered, but ‘We’re still waiting.’ Another senior psychiatrist said, ‘Patients deserve better.’ In the UK, clinical psychologists have challenged the use of diagnosis and the ‘illness’ model.

The Hearing Voices Network, alongside many of our professional allies in psychology and psychiatry, has serious concerns about the way we currently understand, categorise and respond to mental distress . We also recognise the confusion that can be caused when accepted facts, often presented to service users as truths, are challenged.

We believe that people with lived experience of diagnosis must be at the heart of any discussions about alternatives to the current system. People who use services are the true experts on how those services could be developed and delivered; they are the ones that know exactly what they need, what works well and what improvements need to be made. This statement outlines the main issues, as we see them, and invites people on the receiving end of a diagnosis to have a voice in this debate.

Main Issues

Psychiatric diagnoses are scientifically unsound:

  • No objective tests: Unlike most fields of medicine, psychiatric diagnoses are not provided on the basis of objective tests or measures.
  • They’re artificial: There is strong evidence that diagnoses do not represent meaningful clusters of problems or link to known biological abnormalities. Diagnoses are voted into existence by committee, representing opinion rather than scientific fact.
  • Drug company involvement: There is growing concern that new diagnoses are both suggested and shaped by (initiated by) drug company funded research and interests.
  • Unreliable: The diagnosis you receive from a psychiatrist is based on their opinion about what you have told them. Different psychiatrists often have different opinions about the same person, leading to multiple diagnoses. Two people with the same diagnosis may have nothing in common.
  • Limited explanation: Whilst diagnosis seems to provide an explanation for people’s problems, this isn’t the case. People are told they have ‘schizophrenia’ on the basis of their unusual thoughts, experiences, feelings & behaviour. If they then ask why they are having these unusual experiences, they are told it is because they have ‘schizophrenia’. This circular argument explains nothing.
  • Limited use: The issues raised above mean that diagnoses are a flawed basis for deciding on treatment, predicting outcomes and carrying out research.

Psychiatric diagnoses have damaging consequences:

  • Misses the point: Increasing evidence demonstrates mental distress is an understandable reaction to adversity, including: bereavement, loss, poverty, discrimination, trauma, abuse and victimisation. By focusing on ‘what’s wrong with you’, diagnoses can stop professionals asking ‘what’s happened to you’.
  • Missed opportunity: Psychiatric diagnoses can stop people addressing the links between social and economic policy and mental distress. Essential funds are used in the ongoing futile search for genetic markers instead of addressing the societal issues we know lead to mental health problems.
  • Disempowers: Psychiatric diagnosis ignores people’s own explanations for their distress and encourages them to defer to an ‘expert’ for treatment. Having your reality redefined in terms of illness and biology is an incredibly powerful experience that can set the scene for a lifelong psychiatric career.
  • Medication-focused: In diagnoses such as ‘schizophrenia’ treatment is primarily medication, which is becoming increasingly criticised for its harmful effects and lack of efficacy. Medication does nothing to address underlying difficulties.
  • Human rights: People are expected to accept diagnoses for fear of being labelled as ‘lacking in insight’ and having treatment forced on them, violating their basic human rights. Others may, understandably, hide their voices or visions to escape forced treatment – blocking them from receiving help to cope with their experiences.
  • Takes away hope: Diagnoses such as schizophrenia and personality disorder, seen as a life-long condition, can unnecessarily take away people’s hope for a meaningful recovery.
  • Discrimination: People diagnosed with ‘severe and enduring mental illnesses’ are often subject to stigma, discrimination and exclusion. They may have trouble getting insurance, security clearance to travel overseas, and difficulty fostering or adopting children.

A Way Forward

Finding the best way to support those of us who are suffering and struggling to cope without relying on diagnoses and the existing system is a challenge. It can be hard to see what is possible when all we have known is what is available. Still, we want to engage people with lived experience of diagnosis and our allies, in a discussion to create a way forwards.

Our initial ideas include:

  • Seeing mental distress as human and, ultimately, understandable: Rather than seeing voices, visions and extreme states as symptoms of an underlying illness, we believe it is helpful to view them as meaningful experiences – even if we don’t yet know what that meaning is. We believe it’s important to use human language when describing human experiences rather than medical terminology. Given the role of trauma and adversity, we need to start asking ‘what has happened to you?’ rather than ‘what is wrong with you?’
  • Keeping the person in the driving seat: We want people to have the freedom to define their own experience. Support should be based on need, not diagnosis. Equally, people need to access a wide range of alternatives to understand and manage their experiences. Medication is just one way, amongst many, that people may choose. We need information about the pros/cons of each approach – true choice and collaboration, no coercion.
  • Supportive communities: Mental distress is not just the domain of mental health services. Communities have an important role to play in supporting those who are struggling to cope. Community based options can run alongside, and as alternative to, psychiatry. Equally, these approaches must go hand in hand with greater awareness of the causal impact of social factors such as poverty, gender and racial inequalities, unemployment, deprivation and abuse, on mental distress

  See some other articles regarding the uproar here

 
and here
 
Things are certainly heating up

DSM 5 Psychiatric manual under attack.

The latest edition of DSM, the influential American dictionary of psychiatry, says that shyness in children, depression after bereavement, even internet addiction can be classified as mental disorders. It has provoked a professional backlash, with some questioning the alleged role of vested interests in diagnosis

See the full article here 

http://m.guardian.co.uk/society/2013/may/12/medicine-dsm5-row-does-mental-illness-exist

It has the distinctly uncatchy, abbreviated title DSM-5, and is known to no one outside the world of mental health.

But, even before its publication a week on Wednesday, the fifth edition of the Diagnostic and Statistical Manual, psychiatry’s dictionary of disorders, has triggered a bitter row that stretches across the Atlantic and has fuelled a profound debate about how modern society should treat mental disturbance.

Critics claim that the American Psychiatric Association’s increasingly voluminous manual will see millions of people unnecessarily categorised as having psychiatric disorders. For example, shyness in children, temper tantrums and depression following the death of a loved one could become medical problems, treatable with drugs. So could internet addiction.

Inevitably such claims have given ammunition to psychiatry’s critics, who believe that many of the conditions are simply inventions dreamed up for the benefit of pharmaceutical giants.

A disturbing picture emerges of mutual vested interests, of a psychiatric industry in cahoots with big pharma. As the writer, Jon Ronson, only half-joked in a recent TED talk: “Is it possible that the psychiatric profession has a strong desire to label things that are essential human behaviour as a disorder?”

Psychiatry’s supporters retort that such suggestions are clumsy, misguided and unhelpful, and complain that the much-hyped publication of the manual has become an excuse to reheat tired arguments to attack their profession.

But even psychiatry’s defenders acknowledge that the manual has its problems. Allen Frances, a professor of psychiatry and the chair of the DSM-4 committee, used his blog to attack the production of the new manual as “secretive, closed and sloppy”, and claimed that it “includes new diagnoses and reductions in thresholds for old ones that expand the already stretched boundaries of psychiatry and threaten to turn diagnostic inflation into hyperinflation”.

Others in the mental health field have gone even further in their criticism. Thomas R Insel, director of the National Institute of Mental Health, the American government’s leading agency on mental illness research and prevention, recently attacked the manual’s “validity”.

And now, in a significant new attack, the very nature of disorders identified by psychiatry has been thrown into question. In an unprecedented move for a professional body, the Division of Clinical Psychology (DCP), which represents more than 10,000 practitioners and is part of the distinguished British Psychological Society, will tomorrow publish a statement calling for the abandonment of psychiatric diagnosis and the development of alternatives which do not use the language of “illness” or “disorder”.

The statement claims: “Psychiatric diagnosis is often presented as an objective statement of fact, but is, in essence, a clinical judgment based on observation and interpretation of behaviour and self-report, and thus subject to variation and bias.”

The language may be arcane, but the implication is clear. According to the DCP, “diagnoses such as schizophrenia, bipolar disorder, personality disorder, attention deficit hyperactivity disorder, conduct disorders and so on” are of “limited reliability and questionable validity”.

Diagnosis is often described as the holy grail of psychiatry. Without it, psychiatry’s foundations crumble. For this reason Mary Boyle, emeritus professor at the Univerity of East London, believes that the impact of the DCP’s statement marks a dramatic shift in the mental health debate.

“The statement isn’t just an account of the many problems of psychiatric diagnosis and the lack of evidence to support it,” she said. “It’s a call for a completely different way of thinking about mental health problems, away from the idea that they are illnesses with primarily biological causes.”

Psychiatrists say that such claims have been made many times before and ignore mountains of peer-reviewed papers about the importance that biological factors play in determining mental health, including significant work in the field of genetics. It also, they say, misrepresents psychiatry’s position by ignoring its emphasis on the impact of the social environment on mental health.

Most psychiatrists concede that diagnosis of psychiatric disorder is not perfect. But, as Harold S Koplewicz, a leading child and adolescent psychiatrist, explained in an article for the Huffington Post, “those lists of behaviours in the DSM, and other rating scales we use, are tools to help us look at behaviour as objectively as possible, to find the patterns and connections that can lead to better understanding and treatment”.

Independent experts also say that it is hard to see how the world of mental health could function without diagnosis. “We know that, for many people affected by a mental health problem, receiving a diagnosis enabled by diagnostic documents like the DSM-5 can be extremely helpful,” said Paul Farmer, chief executive of the mental health charity Mind. “A diagnosis can provide people with appropriate treatments, and could give the person access to other support and services, including benefits.”

But even Farmer acknowledged that diagnosis is imperfect. “For example it takes, on average, 10 years before a person with bipolar disorder gets a correct diagnosis, which comes with a number of mental and physical health implications, such as side-effects from the wrong medication,” he said.

But now the DCP has transformed the debate about diagnosis by claiming that it is not only unscientific but unhelpful and unnecessary.

“Strange though it may sound, you do not need a diagnosis to treat people with mental health problems,” said Dr Lucy Johnstone, a consultant clinical psychologist who helped to draw up the DCP’s statement.

“We are not denying that these people are very distressed and in need of help. However, there is no evidence that these experiences are best understood as illnesses with biological causes. On the contrary, there is now overwhelming evidence that people break down as a result of a complex mix of social and psychological circumstances – bereavement and loss, poverty and discrimination, trauma and abuse.”

Eleanor Longden, who hears voices and was told she was a schizophrenic who would be better off having cancer as “it would be easier to cure”, explains that her breakthrough came after a meeting with a psychiatrist who asked her to tell him a bit about herself. In a paper for the academic journal, Psychosis, Longden recalled: “I just looked at him and said ‘I’m Eleanor, and I’m a schizophrenic’.”

Longden writes: “And in his quiet, Irish voice he said something very powerful, ‘I don’t want to know what other people have told you about yourself, I want to know about you.’

“It was the first time that I had been given the chance to see myself as a person with a life story, not as a genetically determined schizophrenic with aberrant brain chemicals and biological flaws and deficiencies that were beyond my power to heal.”

Longden, who is pursuing a career in academia and is now a campaigner against diagnosis, views this conversation as a crucial first step in the healing process that took her off medication. “I am proud to be a voice-hearer,” she writes. “It is an incredibly special and unique experience.”

Hers is an inspirational story. But to focus on one person’s experiences would be to ignore the testimonies of others who believe that their mental distress has biomedical roots. Indeed, many people report that they can see no clear reason for their distress and firmly believe their life stories have little bearing on their mental state.

Nevertheless the DCP believes the world of mental health treatment would benefit from a “paradigm shift” so that it focused less on the biological aspects of mental health and more on the personal and the social.

“In essence, instead of asking ‘What is wrong with you?’, we need to ask ‘What has happened to you?’,” Johnstone said. “Once we know that, we can draw on psychological evidence to show how life events and the sense that people make of them have led to the current difficulties.”

A shift away from a biological focus would give succour to psychiatry’s critics, who question society’s reliance on the use of drugs or interventions such as electroconvulsive therapy to treat psychiatric breakdown.

Prescriptions of antidepressants increased nearly 30% in England between 2008 and 2011, the latest available data.

A recent article in the online edition of the British Medical Journal suggested “that only one in seven people actually benefits” from antidepressants and claimed that three-quarters of the experts who wrote the definitions of mental illness had links to drug companies.

Professor Sir Simon Wessely, chair of Psychological Medicine at King’s College London (KCL), argues that his profession has always emphasised the need to “look at the whole person, and indeed beyond the person to their family, and to society”, and that claims psychiatry is being “taken over by the biologists” are unfounded.

This defence, which will be outlined at a major international conference on the impact of DSM-5, to be held at KCL at the beginning of June, is often lost in a shrill debate.

Indeed, it is noticeable just how vocal psychiatry’s critics are becoming ahead of the publication of DSM-5. In an attempt to pour oil on troubled waters, Professor Sue Bailey, president of the Royal College of Psychiatrists, conceded that “many of the criticisms that are levelled at DSM” were valid but warned that the row was “distracting us from the real challenge, which is providing high-quality mental health services and treatment to patients and carers”.

Bailey insisted the manual’s publication “won’t have any direct influence on the diagnosis of mental illness in the NHS”. But it will frame the wider debate about how people see mental health. As Wessely acknowledged, psychiatry’s critics will seize on the manual’s “daft” new categories of mental disorder to bolster claims that the profession is “medicalising normality”.

There is an irony here. Psychiatry lies wounded and much of the damage appears to be self-inflicted. The emotional scars may take decades to heal.

Voice hearers experience of Neurolink

This is an email I received last year, and I thought I had posted it here. But doesnt look like it. We like to share what other voice hearers find helpful.

I have spoken to you a couple of times over the past few years in regards to my husband who has been a voice hearer for as long as he can remember. As discussed in the past he hears very aggressive negative voices.

I wanted to let you know the very interesting journey we have been down this year…..

In June he had a sudden onset of a severe pain in the back of his head that was so intense we ended up at hospital with him getting CT scans and lumbar puncture to screen for a brain tumour. The tests came back negative and he was just given pain killers and basically told to see how it goes. This pain in his head did not leave for 5 months solid. In that time he was seen by Rheumatologist (given steroid shots in his skull) to no avail. Then he saw a Neurologist who said it was a chronic nerve pain called occipital neuralgia. This pain never left in five months and left all the specialists and osteopaths scratching their heads. The last thing we got told was that maybe his depression was causing pain so to take a high dose anti depressant  !!!!  Honestly !?! how insulting !

 After this pain wearing him down for such a long time in desperation we decided to try a few new things ……A friend of ours was telling us amazing results that her and her friends had had at a place called Neurolink in Greenlane.

So with nothing much to lose we gave it a go ……here’s the best part …..he left there with his headache completely gone ….and even more amazing than that ….he left there with no voices !!!!!!! he told me this a week after the treatment because he couldn’t quite believe it ! They have been gone ever since he had treatment, which is now a couple of months!

 This was just amazing because his voices are with him all day every day running a constant commentary on his daily life and activities!

Neurolink is a technique to reconnect neural path ways that have been disrupted. The treatment is completely gentle an non invasive with a series of muscles tests and tapping technique

I thought I would let you know as this has been an amazing experience and We want to share this experience with others. We told the Neurolink practitioner about his voices whilst we were there.

 We are happy for you to pass this info on if you wanted to

 They have a website you may want to check out    

 http://www.neurolinkglobal.com

 Take care

 We are always happy to share what works and what doesnt.

 

BBC videos on isolation and hallucinations

Found these fascinating videos , they are excerpts from a BBC documentary, where they placed people in isolation ( in darkness) for 48 hours. Many started hallucinating. The Dr commented that in a lack of sensory environment, the brain stilll has to function, so it continues to create and work regardless.

So how helpful is solitary confinement for mentally ill one must ask? Many voice hearers will attest to the fact that isolation, and lack of sleep, and also late at night voices are often worse( when awake in the dark)

Here is the first http://www.youtube.com/watch?v=jfdN_megX4E&feature=fvwrel
in the second one you see them experiencing hallucinations http://www.youtube.com/watch?

v=0nnekxGE0nM&feature=fvwrel
The third one, they are tested afterwards, and their mental capabilities have deteriorated http://www.youtube.com/watch?v=2ewX-4eIomM&feature=relmfu